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    Support in one location.

    Patient support available for you

    Ultragenyx is committed to patients with rare diseases, which is why we created UltraCare Patient Services for DOJOLVI—your guide throughout your DOJOLVI treatment journey.

    Our UltraCare Case Managers have varied backgrounds, including social workers, healthcare professionals, and patient advocates, and are ready to help you gain and maintain access to DOJOLVI.

    UltraCare Case Managers can help you with:

    • Reimbursement Navigation
    • Educational Support
    • Adherence Support
    • Financial Support
    • Pharmacy Services
    • Bilingual Support

    Download DOJOLVI materials

    DOJOLVI Brochure
    and Dosing Guide

    Learn about LC-FAOD, DOJOLVI, and patient support available to you

    DOJOLVI® (triheptanoin) Patient Brochure

    Download

    Daily
    Dosing Tracker

    A tool you can use to keep track of your DOJOLVI doses and notes for your healthcare team

    DOJOLVI® (triheptanoin) Daily Dosing Tracker

    Download

    Materials Compatibility
    Reference

    A reference overview of materials that are compatible or incompatible to use with DOJOLVI.

    DOJOLVI® (triheptanoin) Daily Dosing Tracker

    Download

    Instructional Dosing Videos

    Precautions
    Press-in Bottle Adapter
    Syringe Dosing
    Syringe Cleaning
    Dosing Cup
    Dosing Cup Cleaning

    Instructional Mixing Videos

    Mixing DOJOLVI into fat-free milk
    Mixing DOJOLVI into fat-free yogurt
    Mixing DOJOLVI into whole-grain hot cereal
    Mixing DOJOLVI into a fat-free, low-carbohydrate smoothie

    Learn more and find your community*

    Metabolic disease information and advocacy

    Canadian advocacy organization working to educate and support patients with mitochondrial disease and their families

    An advocacy organization working to educate and support patients with mitochondrial disease and their families

    A scientific organization specifically dedicated to research and education about fatty acid oxidation disorders

    Rare disease information and advocacy

    A center within the National Institutes of Health (NIH) that maintains a list of rare diseases and related terms to help people find reliable information about their disease

    An advocacy organization that provides support, education, and resources to the rare disease community

    *These organizations are an incomplete listing of rare disease advocacy groups and are not controlled by, endorsed by, or affiliated with Ultragenyx Pharmaceutical Inc. The list is meant for informational purposes only and is not intended to replace your healthcare professional’s medical advice. Ask your doctor or nurse any questions you may have about your disease or treatment plan. If you would like to have your group added to the list, please contact [email protected].

    What is DOJOLVI used for?

    DOJOLVI is used as a source of calories and fatty acids to treat adults and children with long-chain fatty acid oxidation disorders (LC-FAOD).

    To help avoid side effects and ensure proper use, talk to your healthcare professional before you take DOJOLVI. Talk about any health conditions or problems you may have, including if:

    • You have feeding tube problems. Feeding tubes can break down over time. It is possible that using DOJOLVI with a feeding tube might also contribute to its breakdown. Check the feeding tube regularly to ensure it is not damaged and is working properly
    • You have pancreatic insufficiency. This is a condition where the pancreas does not make enough enzymes to help digest food properly
    • You or your partner are pregnant or planning to get pregnant
    • You are breastfeeding or plan to breastfeed

    Visits with your healthcare professional: You should have regular visits with this healthcare professional so they can:

    • Determine how DOJOLVI is working for you
    • Make adjustments to your dose
    • Talk to you about your diet

    Tell your healthcare professional about all the medicines you take, including any drugs, vitamins, minerals, natural supplements or alternative medicines.

    The following may interact with DOJOLVI:

    • Medicines called pancreatic lipase inhibitors, which act on enzymes in the gastrointestinal tract. An example is the medicine orlistat
    • A medicine used to treat seizures, bipolar disorder or migraines called valproic acid

    What are possible side effects from using DOJOLVI?

    • Abdominal pain
    • Vomiting
    • Diarrhea
    • Nausea

    These are not all the possible side effects you may feel when taking DOJOLVI. If you experience any side effects not listed here, contact your healthcare professional.

    If you want more information about DOJOLVI:

    LESS -

    What is DOJOLVI used for?

    DOJOLVI is used as a source of calories and fatty acids to treat adults and children with long-chain fatty acid oxidation disorders (LC-FAOD).

    To help avoid side effects and ensure proper use, talk to your healthcare professional before you take DOJOLVI. Talk about any health conditions or problems you may have, including if:

    • You have feeding tube problems. Feeding tubes can break down over time. It is possible that using DOJOLVI with a feeding tube might also contribute to its breakdown. Check the feeding tube regularly to ensure it is not damaged and is working properly
    • You have pancreatic insufficiency. This is a condition where the pancreas does not make enough enzymes to help digest food properly
    • You or your partner are pregnant or planning to get pregnant
    • You are breastfeeding or plan to breastfeed

    Visits with your healthcare professional: You should have regular visits with this healthcare professional so they can:

    • Determine how DOJOLVI is working for you
    • Make adjustments to your dose
    • Talk to you about your diet

    Tell your healthcare professional about all the medicines you take, including any drugs, vitamins, minerals, natural supplements or alternative medicines.

    The following may interact with DOJOLVI:

    • Medicines called pancreatic lipase inhibitors, which act on enzymes in the gastrointestinal tract. An example is the medicine orlistat
    • A medicine used to treat seizures, bipolar disorder or migraines called valproic acid

    What are possible side effects from using DOJOLVI?

    • Abdominal pain
    • Vomiting
    • Diarrhea
    • Nausea

    These are not all the possible side effects you may feel when taking DOJOLVI. If you experience any side effects not listed here, contact your healthcare professional.

    If you want more information about DOJOLVI:

    MORE +